In
1974, at the age of 6, I was diagnosed with severe asthma. The initial result
was that I spent a good portion of first grade at home rather than in school. I
had a friend who lived down the street who would get off the bus, come to my
house, and pick up my completed work and drop off new assignments. At that
time, the convenient portable inhalers and nebulizers were not available. Each
asthma attack meant a rushed trip to the emergency room to spend time in an
oxygen tent. The doctors were also unclear about what was triggering my
attacks, so a great deal of time that year was spent eliminating certain foods
from my diets, testing my reactions to things like extreme hot and cold, pets,
and plants. It was finally determined
that my particular triggers were pet hair, pollen, bee stings, and extremely
cold air. For years, my mother did everything she could to keep me inside and
“safe” where she could watch me. This meant I wasn’t allowed to play any sports,
go out in the snow, have a pet, or basically have a normal childhood. I was
rarely allowed to visit the homes of classmates, because they might have a pet
or something else that would make ne wheeze. I even spent recesses inside most
of the time because of the fear of something triggering an attack. These severe
restrictions made developing friendships difficult. I stopped getting invited
places because I was so rarely allowed to go. My playmates were my siblings and
the few kids who stuck by me.
As I
got older, the attacks became less frequent and less severe. This, combined
with the availability of portable medications that I could administer myself
meant that many of the restrictions on my life were lifted. By the time I
reached junior high, I was allowed to join a swim team and enjoy outdoor
activities. I tried out for softball, basketball, and cheerleading, but I never
made the cut because I lacked the skills that I should have developed when I
was younger. Since I lacked the skills for sports, I decided to pursue other
activities. I joined the school chorus and youth folk group in my church. I
began teaching the music program in my church’s religious education program as
well. I joined the yearbook staff, and became the editor by my senior year.
Yes, my
condition played havoc with my development of gross motor and social skills,
but I learned to adapt. In time, I caught up to my peers socially, although I
tend to be clumsy and not coordinated enough for sporting games.
Asthma
continued to be a serious medical threat for children around the world. In
fact, the threat seems to be getting worse in some areas, while others have
taken steps to try and reduce the risk by working to reduce air pollution—a big
factor in asthma. In addition, the
science community is realizing that they don’t understand how asthma works as
well as they thought they did. They are realizing that standard practices intended
to increase health worldwide may in fact be making the problem worse instead of
better.
My daughter had asthma really bad for a number of years and eventually grew out of it. I can relate to driving her weak and limp body to the emergency room every month at the end of the month. I had to switch her pre-k school because they refused to keep her indoors when the weather was horrible. It was a trigger for her attacks. Portable neubs are great but I know the struggle and pain your mother felt. I carried it everywhere. Flying on an airplane was an immediate attack. My parents swear the medications made her gain weight although is very tall.
ReplyDeleteIt is a regulation that all children go outside to play if the temps are between 25 and 90 degrees, but if there is a medical reason such as asthma, they cannot make a child go out as long as there is a doctor's note specifying under what conditions a child needs to remain indoors. I just had this battle with an incoming mother with twins. I told her I would be happy to comply with her request if she could provide medical documentation as required by the state. She failed to do so, and so her children play outside every day. So far, there has not been an incident, thank goodness! I thought I grew out of my asthma when I was in my late teens--I hadn't had an attack in ages. I even stopped filling my inhaler because I didn't seem to need it any more. Unfortunately, it returned when I was in my late 20's. Thankfully, there are now medications I can take to prevent most attacks from occurring! The medications do, however, have side effects such as weight gain.
DeleteIt sounds like you had a difficult time as a child. It is sad with all the modern technology we have that we cannot find something that can help children with asthma. So that they can run and play like others and be around things without worrying about having an attack. It is good to keep bringing awareness to it and sharing your story with others.
ReplyDeleteThings are much better now than they were in the early to mid 70's. There are new medications, portable inhalers, and new breathing treatments that make living with asthma easier. It is a shame that instead of treatments that cures aren't discovered!
DeleteI had to comment on your post because I, too, was a severe asthmatic as I child. I was diagnosed at 14 months old and by my 17th birthday, I had been hospitalized 49 times and on life support 4 times due to asthma attacks. I lived in the age of portable inhalers, nebulizers, and epipens and I had all three with me at all times up until my middle school years. I remember having to go to the clinic after lunch for my "treatment" everyday. I wasn't allowed to do very many sports, especially if it was considered "strenuous". Like yourself, my doctor could never figure out what triggered my attacks. I took allergy shots every month and even traveled to the National Jewish Hospital in Denver, Colorado, when I was 10 years old, to do extensive tests to see they could find out what triggered my attack...to no avail. I still have to take to inhalers (Advair and Ventolin) on a daily basis to control my symptoms.
ReplyDeleteI have both emotionally and allergy-triggered asthma. But, I appreciate having those experiences as a child because I feel it made me stronger as an adult. When live through something as life threatening as an asthma attack, there's nothing you can't live through! I am so glad to see that I am not the only one who experienced this disease so severely.
Hi Kath
ReplyDeleteI was diagnosed with Chronic Asthma at age 35 years old but, it never bother me before until now, I just barely made to the hospital last Friday with only a small amount of air flowing in my body. As of today it has affect my voice, brought stress to my heart and lung. Now on June 6 I have to see the Pulmonary team. Not only is asthma working against me there' Diabetes which, I try to keep under control.